Document Type

Article

Publication Date

7-2019

Keywords

JGM

JAX Source

Clin Transl Sci 2019 Jul; 12(4):329-333

PMID

31074176

DOI

https://doi.org/10.1111/cts.12638

Abstract

Access to clinical data is critical for the advancement of translational research. However, the numerous regulations and policies that surround the use of clinical data, although critical to ensure patient privacy and protect against misuse, often present challenges to data access and sharing. In this article, we provide an overview of clinical data types and associated regulatory constraints and inferential limitations. We highlight several novel approaches that our team has developed for openly exposing clinical data.

Comments

This is an open access article under the terms of the Creative Commons Attribution- NonCommercial License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

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