The Global State of the Genetic Counseling Profession.

MaryAnn Abacan
Lamia Alsubaie
Kristine Barlow-Stewart
Beppy Caanen
Christophe Cordier
Eliza Courtney
Emeline Davoine
Janice Edwards
Niby J Elackatt
Kate Gardiner
Yue Guan
Lian-Hua Huang
Charlotta Ingvoldstad Malmgren
Sahil Kejriwal
Hyon J Kim
Deborah Lambert
Paulina Araceli Lantigua-Cruz
Juliana M H Lee
Marianne Lodahl
Åshild Lunde
Shelley Macaulay
Ivan Macciocca
Sonia Margarit
Anna Middleton
Ramona Moldovan
Joanne Ngeow
Alexandra J Obregon-Tito
Kelly E Ormond
Milena Paneque
Karen Powell
Kunal Sanghavi, The Jackson Laboratory
Diana Scotcher
Jenna Scott
Clara Serra Juhé
Shiri Shkedi-Rafid
Tina-Marié Wessels
Sook-Yee Yoon
Catherine Wicklund


The profession of genetic counseling (also called genetic counselling in many countries) began nearly 50 years ago in the United States, and has grown internationally in the past 30 years. While there have been many papers describing the profession of genetic counseling in individual countries or regions, data remains incomplete and has been published in diverse journals with limited access. As a result of the 2016 Transnational Alliance of Genetic Counseling (TAGC) conference in Barcelona, Spain, and the 2017 World Congress of Genetic Counselling in the UK, we endeavor to describe as fully as possible the global state of genetic counseling as a profession. We estimate that in 2018 there are nearly 7000 genetic counselors with the profession established or developing in no less than 28 countries.